LUPUS RESOURCES
For More Information
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National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
Information Clearinghouse
National Institutes of Health
1 AMS Circle
Bethesda, MD 20892-3675
Phone: 301-495-4484
Toll Free: 877-22-NIAMS (226-4267)
TTY: 301–565–2966
Fax: 301-718-6366
Email: NIAMSinfo@mail.nih.gov
Website: http://www.niams.nih.gov
NIAMS, a component
of the National Institutes of Health (NIH) within the U.S. Department of Health
and Human Services, conducts and supports medical research on the causes, treatment,
and prevention of diseases of bones, joints, muscles, and skin; trains scientists
to carry out this research; and disseminates information on research progress
to improve public health.
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American College of Rheumatology (ACR)
1800 Century Place,
Suite 250
Atlanta, GA 30345-4300
Phone: 404-633-3777
Fax: 404-633-1870
Website: http://www.rheumatology.org
The American College
of Rheumatology (ACR) is an organization of doctors and associated health professionals
who specialize in arthritis and related diseases of the bones, joints, and muscles.
The Association of Rheumatology Health Professionals, a division of ACR, aims
to enhance the knowledge and skills of rheumatology health professionals and
to promote their involvement in rheumatology research, education, and quality
patient care. The association also works to advance and promote basic and continuing
education in rheumatology for health professionals who provide care to people
with rheumatic diseases.
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Alliance for Lupus Research, Inc.
28 West 44th Street,
Suite 501
New York, NY 10036
Phone: 212-218-2840
Toll Free: (800) 867-1743
Website: http://www.lupusresearch.org
The Alliance for
Lupus Research, Inc. (ALR), is a nonprofit organization devoted exclusively
to the support of promising research for the prevention, treatment, and cure
of lupus. Through accelerated, focused, goal-oriented research programs, the
ALR aims to promote basic and clinical sciences to achieve major advances leading
to a better understanding of the causes of lupus.
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American Autoimmune-Related Diseases Association, Inc. (AARDA)
22100 Gratiot
Ave.
East Detroit, MI 48021
Phone: 586-776-3900
Toll Free: 800-598-4668
Fax: 586-776-3903
Email: aarda@aarda.org
Website: http://www.aarda.org
The American Autoimmune-Related
Diseases Association (AARDA) is a nonprofit voluntary health agency dedicated
to bringing a national focus and collaborative effort to the more than 100 known
autoimmune diseases through education, awareness, research, and patient services.
By collaborating with the National Coalition of Autoimmune Patient Groups (NCAPG),
AARDA supports legislative advocacy for autoimmune disease patients. AARDA provides
free patient education information, physician and agency referrals, forums and
symposia, and a quarterly newsletter.
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Arthritis Foundation
P.O. Box 7669
Atlanta, GA 30357-0669
Phone: 404-872-7100
Toll Free: 800-283-7800
Website: http://www.arthritis.org
The Arthritis
Foundation is devoted to supporting arthritis research and providing educational
and other services to individuals with arthritis. The foundation publishes a
free pamphlet on rheumatoid arthritis and a magazine for members on all types
of arthritis. It also provides up-to-date information on research and treatment,
nutrition, alternative therapies, and self-management strategies. Chapters nationwide
offer exercise programs, classes, support groups, physician referral services,
and free literature. The foundation also has free information about lupus, scleroderma,
and other autoimmune and rheumatic conditions on its Web site.
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Lupus Clinical Trials Consortium, Inc. (LCTC)
142 West 57th
Street, Suite 15A
New York, NY 10019
Phone: 212-593-7227
Fax: 212-593-3133
Email: info@lupus-consortium.org
Website: http://www.lupusclinicaltrials.org
The LCTC is a
nonprofit organization that encourages the identification and testing of promising
new therapies for lupus. It provides infrastructure support grants to certain
academic institutions to support their clinical research activities; encourages
lupus clinical researchers from those institutions to share their expertise;
supports and conducts educational efforts to show the need for lupus clinical
research; and disseminates scientific insights to advance the discovery of new
lupus therapies.
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Lupus Foundation of America (LFA)
2000 L Street,
N.W., Suite 710
Washington, DC 20036
Phone: 202-349-1155
Toll Free: 800-558-0121
Fax: 202-349-1156
Website: http://www.lupus.org
The Lupus Foundation
of America is a national nonprofit voluntary health organization dedicated to
finding the causes of and cure for lupus; and to providing support, services
and hope to all people with this condition. The LFA and its network of nearly
300 chapters and support groups conduct programs of research, education, and
advocacy.
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Lupus Research Institute
330 Seventh Ave,
Suite 1701
New York, NY 10001
Phone: 212-812-9881
Fax: 212-545-1843
Email: Lupus@LupusNY.org
Website: www.lupusresearchinstitute.org
The Lupus Research
Institute provides funds for promising new ideas for curing, preventing, and
treating lupus.
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Rheuminations, Inc.
142 West 57th
Street, Suite 15A
New York, NY 10019
Phone: 212-593-5180
Fax: 212-803-0059
Website: http://www.dxlupus.org
Rheuminations
is a private, nonprofit foundation committed to funding excellence in medical
research, which will foster a better understanding of the causes of lupus and
bring new treatments to market; educate and empower those who live with lupus
and those who care for them; and establish a higher level of public awareness
about the disease.
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SLE Lupus Foundation
330 Seventh Avenue,
Suite 1701
New York, NY 10001
Phone: 212–685–4118
Toll Free: 800-74-LUPUS (745-8787)
Fax: 212-545-1843
Email: lupus@lupusny.org
Website: http://www.lupusny.org
The SLE Foundation
supports and encourages medical research to find the cause and cure of lupus,
and improve its diagnosis and treatment. It also provides a wide variety of
services to help people with lupus and their families. In addition, this voluntary
organization conducts a broad-based public education program to raise awareness
of lupus, and increase understanding of this serious chronic autoimmune disease.